Some of the most meaningful messages we receive come from parents who understand this journey firsthand.
Recently, Golem M. wrote to us about his 11-year-old son who is battling uveitis:
“Our awesome 11 year old son has Uveitis, and we give him Humira shots every two weeks… We can understand the difficulties you have to deal with to find a cure for your son. I applaud your conviction and appreciate your effort.”
There is something profoundly powerful about solidarity between families navigating medical uncertainty. It’s not just empathy — it’s lived experience.
Another supporter, Sarah K., shared her own deeply personal story:
“After surgery and then having a stroke that made me blind… my sight completely restored in just 3 days… I am aware of what it means to be blind and how this is a lifelong reality for so many. Thank you for being a force to fight for eye sight especially in precious children.”
When someone who has experienced blindness personally reaches out to encourage us, it carries extraordinary weight. These are not abstract supporters. These are people who know what darkness feels like — and still choose hope.
We also heard from Wendy B., who reflected on the power of research in her own life:
“If it was not for research and trials like this I would of been crippled… I think my personal experience with all these kind of things. I Love my e and am so looking forward for school.”
Research changes lives. Clinical trials change futures. Behind every funding milestone are real human beings whose quality of life was altered because someone chose to invest in science.
That is why we do what we do.
Because children deserve more than management plans and coping strategies. They deserve possibility.
To the families walking this road alongside us — we see you. We understand the sleepless nights, the appointments, the decisions that weigh heavier than they should.
And we are so grateful you are here.
