Ends November 8, 2026
![Build Your Own Dream Van (BYOVan #3)]()
Build Your Own Dream Van (BYOVan #3)
170" WB AWD Sprinter + $125,000 custom build budget with Rossmönster Vans + $50,000 cash
LEARN MORENon-profit funding sight-saving research for children
Our goal is to advance therapies for pediatric inherited retinal diseases. Our current target: we are fundraising for rare disease research and gene-agnostic therapies for childhood blindness.
You can make an impact on saving childhood eyesight by entering our giveaway fundraisers.
How our fundraisers work
Learn how you can make an impact on sight-saving research and have a chance to win a life-changing prize.
Our impact
$6.1M
granted to sight-saving research as of October 2026, from giveaway fundraisers and direct donations. Every mile below was paid for by entries like yours.
To Axovia Therapeutics, to move a gene therapy for retinitis pigmentosa caused by BBS1 toward a clinical trial.
Oct 2024Second Axovia grant: GLP toxicology, manufacturing, and the regulatory work needed before a trial could open.
Dec 2024Third Axovia grant, bringing AXV-101 funding to $4M; the UK trial application was cleared in Q3 2025.
Sep 2025Closed the remaining funding gap; RAB's total funding for AXV-101 reaches $5.1M, from lab to first patient.
Jan 2026With Foundation Fighting Blindness: $775,000 to the RD Fund for gene-agnostic research, matched dollar-for-dollar by the Gund Foundation Challenge, and $225,000 to Dr. Thomas Mendel at Ohio State.
Jun 2026Researchers worldwide can now apply for RAB funding through the Grants Portal.
Aug 2026Amounts and dates come from our grant records and update when a new grant is announced. Each grant links to its announcement where available.
About us
It isn't a race we run. It's a race against time. Kristina and Stephen Johnston founded A Race Against Blindness after their son Luke was diagnosed with Bardet-Biedl syndrome, a rare genetic condition that is slowly taking his sight. What began as a race to fund one gene therapy for one gene has grown into funding research across inherited retinal diseases, a grants program for scientists, and an education hub for families.
No treatment existed for RP caused by BBS1. We decided to fund one.
Our family became the first donor, donating our first prize: the 2023 Adventure Van giveaway fundraiser that started it all.
To Axovia Therapeutics for AXV-101, a gene therapy for RP caused by BBS1.
A total of $5.1M in grant support from RAB made this trial initiation possible.
New $1M grant to gene-agnostic clinical research in partnership with Foundation Fighting Blindness.
Luke’s story of seeing the world before losing more vision was featured on GMA, helping propel our mission to the national level.

Winner's circle
Every review you see here is collected and verified by Trustpilot, not by us. We can't edit them, hide them, or pick the order.
We show every star rating, one through five, because that's what transparency means.
This organization is always up front & transparent. You know exactly where your money is going.
Read on Trustpilot (review by Pamela Burge)Had a Landcruiser almost like the one in the contest. Even the same color-ish. Miss it, and it would be so cool to have another chance at one. Your vehicles are always so enticing.
Read on Trustpilot (review by Terance Huffman)Very satisfied
Read on Trustpilot (review by Albert Blanco)Well organized and well thought out! Great communications!
Read on Trustpilot (review by KELLY Flint)Excellent job 👏 god bless
Read on Trustpilot (review by John Castillo)Excellent, it is all for a great cause. I have only 1 eye. I am grateful the I can see
Read on Trustpilot (review by Jim Haynes)Great charity
Read on Trustpilot (review by Eric Burton)Worthy cause!
Read on Trustpilot (review by Kevin)Excellent cause!!
Read on Trustpilot (review by Dinkleboo)Race Against Blindness is a fantastic organization! I love the passion, kindness, and dedication behind everything they do. Their mission is truly inspiring, and it's wonderful to see people working so hard to make a difference in the lives of their own child and others too. I also love that they make supporting such an important cause fun and exciting through their amazing giveaways! You can tell that so much heart goes into what they do. I'm happy to support an organization that is making such a meaningful difference. ❤️
Read on Trustpilot (review by JENNIFER Camp)Clear and concise. Explained the processes and how they will assist with the taxes based on what’s left over based on your design. Could have explained more about the receipts of the donation. Wonderful cause.
Read on Trustpilot (review by Noelle Flocke)Such a wonderful cause! I worked 41 years in optometry and some with ophthalmology. I loved the field and helping people but helping a child is the most rewarding experience.
Read on Trustpilot (review by Cendi Akin)The cause is the reason... But then the giveaways are cool as well.... I wanted to give back not because I can afford it because there are some that don't have other things like sight...
Read on Trustpilot (review by Tracey Irwin)Having recently received a partial corneal transplant this group holds a special place with me.
Read on Trustpilot (review by Tom C Harrison)I love seeing the effort that Steve and Kristina have put into alchemizing what I can only imagine is an incredibly difficult situation.
Read on Trustpilot (review by Zoe Peterson)The standard how non profits should be run…you literally set the bar… with one exception I didn’t win. 😉🥴 Thank you all for doing what you to help people especially kids. Your efforts make our world a better place.
Read on Trustpilot (review by Bill Landers III)This is a great Non Profit for a fantastic cause.
Read on Trustpilot (review by Cliff Marks)This cause is close to home for our family, so I’m glad to support it. It’s also exciting to have a chance to win while helping make a difference in the fight against blindness!
Read on Trustpilot (review by Ami S)This is a great way to help others in need and at the same time have a chance for a wonderful gift.
Read on Trustpilot (review by Stephen Marrone)What a fabulous way to support a critically important cause! I can’t even imagine the heaviness of facing a future of blindness in your child. I absolutely love the transparency, passion and purpose of this organization and the founders behind it. I’m extremely cautious about where I spend each dollar, I’m retired and truly never throw money at lotteries and sweepstakes, but this one is DIFFERENT!! I pray they not only find a cure through the clinical trials they’re funding, but also that they bring much needed awareness that there are children out there facing this without a solution as of yet. The process to enter or donate is simple, the value of the prizes are amazing, and the ability to help those facing blindness in a very meaningful way is priceless.
Read on Trustpilot (review by Sara Marshall)Great non-profit organization to donate and win prizes. One day I may be a winner!
Read on Trustpilot (review by Udula Jayaweera)I am proud to support A Race Against Blindness because this organization is making a difference in the lives of people who truly need help. It’s not just about winning a prize or receiving something material; it’s about supporting a meaningful cause and helping others. If I ever get lucky enough to win, I would gladly choose the cash option, if available, because I have no need for material things. I would use that opportunity to help my brother with his kidney transplant. He is currently facing a difficult battle, and being able to help him would mean more to me than anything money could buy. That’s what makes this organization worth supporting. It’s not just about the people who win, but also about the lives that can be changed through the generosity of others. I sincerely hope that those who are fortunate enough to win will also find ways to pay it forward and help someone in need. Imagine how many lives we could touch if we all shared a little of our blessings. Wishing A Race Against Blindness continued success in the wonderful work you do. You are truly worth supporting! ❤️
Read on Trustpilot (review by Joyce Dinh)An absolute great cause!
Read on Trustpilot (review by Kenneth Williams)This is a wonderful way to aide in research for childhood blindness, and at the same time have a chance to win a great prized.
Read on Trustpilot (review by Mark Jackson)Reviews come from real donors and supporters who entered a fundraiser or had a direct interaction with our team, each one verified by Trustpilot.
Read all reviews on TrustpilotGrant funding updates
RAB educational series
Blindness Education Podcasts with Co-Founder Dr. Steve Johnston

An introduction to the free clinical trial hub for inherited retinal diseases.
Watch on YouTube (opens in a new tab)
An overview of vision loss treatment topics, including gene therapy and optogenetics.
Watch on YouTube (opens in a new tab)
A look at how viral vectors deliver missing genes in retinal gene therapy.
Watch on YouTube (opens in a new tab)For information only. Discuss clinical trial information with your retina specialist.
We founded the nonprofit when we found out our son has a rare genetic condition and is slowly going blind. But that really only scratches the surface in terms of our motivation. Since learning of Luke's diagnosis, we have become strongly connected to the rare-diseases community. While rare diseases are actually not unusual, with more than 7,000 diseases classified as rare, each one individually often affects only a small number of people. Thus many rare diseases don't receive enough attention and resources to help fund research for adequate treatments or even possible cures.

New fundraisers, winners, and grant news, about twice a month. Questions? The Help Center is our front door.
Visit the Help Center