We’re Funding Sight-Saving Clinical Trials.
We’re on the cusp of funding a clinical trial for a revolutionary new gene therapy. Our goal is to cure retinitis pigmentosa caused by Bardet-Biedl Syndrome (BBS) – a rare but devastating cause of childhood blindness.
We have a chance to change the future for children like Luke.
Luke is 10 years old. He is a sweet, gentle, and big-hearted boy. If we do nothing, Luke will slowly lose his vision by the time he is in his teens. And with that will come the loss of many of the activities and things he currently knows and loves: riding a bike, playing with Pokémon cards, competing in karate, or building Legos. Imagine the fear and suffering you would feel if that was your reality.
The medical research involved in vision saving treatment and restorative therapy is advancing rapidly. This is excellent news! However, funding is significantly limited. Private funding, such as the money we raise, remains the main driver for much of this innovation. Your support is vital to saving children’s vision.
Retinitis pigmentosa (RP) can be caused by many conditions. Luke’s condition is caused by Bardet-Biedl Syndrome (BBS), which affects multiple organ systems, including the eyes. There is a slow, progressive loss of vision until many BBS patients become blind in their teenage years.
You Can Help!
We greatly appreciate the support of anyone who wants to be a part of A Race Against Blindness. You can even host your own fundraiser (bake sale, race event, car wash, etc!) or volunteer in other ways. Regardless of how, we’d love to work with you. Reach out, and let’s coordinate how to beat childhood blindness together.
Adventure Van Fundraiser
Our nonprofit is funding research to bring a new retinal gene therapy to clinical trials in 2024. All of the monies raised in this event go directly to funding that groundbreaking, sight-saving treatment. YOU will help cure childhood blindness with your entry to win.
Do you like to win amazing prizes and want to help beat childhood blindness? This is the place! Our giveaways and auctions have something incredible for everyone. We hope you win something amazing and THANK YOU for supporting our cause.
We are a diverse, motivated, talented and enthusiastic organization. We have all been deeply moved by Luke’s diagnosis and are eager to save the eyesight of our children and thousands of others.
Have You Heard About the RV Giveaway?
The Lucky Winner Is Announced January 1st, 2024.
New Year. New Van. New Adventures.
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