Racing Against Blindness
When we received Luke’s diagnosis that he was going blind, we set out on a summer of visual memories to let him see and experience as much of the world as we could. Our first stop in the summer was Victoria, Canada to do the Victoria Ironman 70.3. It is a symbolic event of mental toughness, and our unwillingness to quit. We do not quit in Ironman, and we will not quit in our battle vs. childhood blindness.
Philanthropy
A UK-based biotech company, Axovia, is working on a promising clinical trial to cure retinitis pigmentosa caused by Bardet-Bieldl syndrome (BBS-1). They’ve progressed to the point of being done with animal studies, and are in preparation for human trials.
Our ultimate goal is to ensure that human trials are funded. Our son’s eyesight depends on it, and there are many other children suffering from his condition. We’re a neutral third party with no stake in the biotech company. We are connecting both investors and philanthropists with Axovia to ensure the success of the research and clinical trial.
For impact investors looking to make a difference, please reach out and we can provide details on how to contact Axovia's team. Major donors similarly can single-handedly ensure the success of a sight-saving therapy for children. Having your name or foundation attached to such an important therapy could enusre a lasting legacy for you, your family or your organization.