How You Can Help - Make a Difference Today
5.0 Top Rating YOU CAN MAKE A DIFFERENCE We have every reason to hope, if we stand together. The medical research involved in vision-saving treatment and restorative therapy is advancing rapidly. This is excellent news! However, resources are extremely limited. You can help us by volunteering your time, creating your own fundraiser, raising awareness, or making a donation to support clinical trials. Racing Against Blindness When we received Luke’s diagnosis that he was going blind, we set out on a summer of visual memories to let him see and experience as much of the world as we could. Our first stop in the summer was Victoria, Canada to do the Victoria Ironman 70.3. It is a symbolic event of mental toughness, and our unwillingness to quit. We do not quit in Ironman, and we will not quit in our battle vs. childhood blindness. Philanthropy A UK-based biotech company, Axovia, is working on a promising clinical trial to cure retinitis pigmentosa caused by Bardet-Bieldl syndrome (BBS-1). They’ve progressed to the point of being done with animal studies, and are in preparation for human t