Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2026

$1.1M

January
$1.1M

To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026.

2025

$1M

September
$1M

To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.

2024

$3M

October
$1M
December
$2M

To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

June 25, 2026
A Father's Legacy | Father's Day Community Series | A Race Against Blindness

A Father's Legacy concludes our Father's Day Community Series by celebrating the lasting influence of fathers, grandfathers, stepdads, and mentors. Through heartfelt stories shared by our community, this collection reminds us that a father's greatest legacy isn't found in what he leaves behind—but in the lives he shapes.

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June 25, 2026
Strength Looks Different | Father's Day Community Series | A Race Against Blindness

Strength Looks Different is the second installment in our Father's Day Community Series, honoring fathers whose quiet resilience has shaped the lives of those around them. Through stories of perseverance, sacrifice, and unwavering love, this collection celebrates the many ways strength is found in fatherhood.

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June 25, 2026
For the Dads Who Show Up | Father's Day Community Stories | A Race Against Blindness

For the Dads Who Show Up is the first installment in our Father's Day Community Series, featuring heartfelt stories submitted by families across the A Race Against Blindness community. Together, they celebrate the fathers who quietly show up, love deeply, and make an extraordinary difference through life's ordinary moments.

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June 20, 2026
IRD Education Hub | Free Inherited Retinal Disease Resource | A Race Against Blindness

If you or a loved one has recently been diagnosed with an inherited retinal disease, you are not alone. Over 2 million people worldwide live with conditions like retinitis pigmentosa, Stargardt disease, Bardet-Biedl syndrome, and dozens of other inherited eye conditions that threaten vision. Finding reliable, up-to-date information can feel overwhelming — especially when your diagnosis is rare. That's why A Race Against Blindness built the IRD Education Hub.

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is RAB legit? June 20, 2026
More Than a Ford Raptor: Why Innovative Fundraising Matters in Rare Disease Research

A recent independent article explored an important question: Why would a childhood blindness nonprofit give away a Ford Raptor? This article explains how innovative fundraising helps accelerate rare disease research, clinical trials, and hope for families affected by inherited retinal diseases.

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