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The Johnston family stands smiling proudly in front of a white background all wearing A Race Against Blindness swag shirts and hats. From left to right: Stephen, Luke, Tyler, and Kristina.

A Family’s Race To Treat Childhood Blindness: A Race Against Blindness Grants $1 Million to Bardet-Biedl Syndrome Research

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Bardet-Biedl Syndrome
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Diagnostic Process for Bardet-Biedl Syndrome
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The Genetic Variants of Bardet-Biedl Syndrome

© 2024 A Race Against Blindness Exempt under Section 501(c)(3) EIN 92-2174042

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Bardet-Biedl Syndrome (BBS) is one of many genetic conditions that can cause RP/blindness in young children. Our son, Luke, has been diagnosed with BBS1 and is actively going blind. And thus, the birth of A Race Against Blindness, an organization dedicated to finding a cure for BBS/RP.

© 2024 A Race Against Blindness

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