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Comprehensive U.S. Directory of Pediatric Retinal Disease Centers

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Bardet-Biedl Syndrome (BBS) is one of many genetic conditions that can cause RP/blindness in young children. Our son, Luke, has been diagnosed with BBS1 and is actively going blind. And thus, the birth of A Race Against Blindness, an organization dedicated to finding a cure for BBS/RP.

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