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Follow A Race Against Blindness research funding, inherited retinal disease developments, community stories, grant announcements, and updates from families racing toward sight-saving treatments.
Featured article
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)
Newly added funding closes critical gap and enables planned trial initiation in early 2026
Latest Posts
Strength Looks Different | Father's Day Community Series | A Race Against Blindness
Strength Looks Different is the second installment in our Father's Day Community Series, honoring fathers whose quiet resilience has shaped the lives of those around them. Through stories of perseverance, sacrifice, and unwavering love, this collection celebrates the many ways strength is found in fatherhood.
For the Dads Who Show Up | Father's Day Community Stories | A Race Against Blindness
For the Dads Who Show Up is the first installment in our Father's Day Community Series, featuring heartfelt stories submitted by families across the A Race Against Blindness community. Together, they celebrate the fathers who quietly show up, love deeply, and make an extraordinary difference through life's ordinary moments.
A Father's Legacy | Father's Day Community Series | A Race Against Blindness
A Father's Legacy concludes our Father's Day Community Series by celebrating the lasting influence of fathers, grandfathers, stepdads, and mentors. Through heartfelt stories shared by our community, this collection reminds us that a father's greatest legacy isn't found in what he leaves behind—but in the lives he shapes.
More Than a Ford Raptor: Why Innovative Fundraising Matters in Rare Disease Research
A recent independent article explored an important question: Why would a childhood blindness nonprofit give away a Ford Raptor? This article explains how innovative fundraising helps accelerate rare disease research, clinical trials, and hope for families affected by inherited retinal diseases.
IRD Education Hub | Free Inherited Retinal Disease Resource | A Race Against Blindness
If you or a loved one has recently been diagnosed with an inherited retinal disease, you are not alone. Over 2 million people worldwide live with conditions like retinitis pigmentosa, Stargardt disease, Bardet-Biedl syndrome, and dozens of other inherited eye conditions that threaten vision. Finding reliable, up-to-date information can feel overwhelming — especially when your diagnosis is rare. That's why A Race Against Blindness built the IRD Education Hub.