News and Articles

Recent News
March 25, 2025
Comprehensive U.S. Directory of Pediatric Retinal Disease Centers

This directory highlights premier institutions across the United States with specialized programs for diagnosing and managing pediatric inherited retinal diseases (IRDs) such as retinitis pigmentosa, Stargardt disease, Leber congenital amaurosis, and Bardet-Biedl Syndrome. Each listing includes the center’s website and contact information.

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Comprehensive U.S. Directory of Pediatric Retinal Disease Centers
Trust, Transparency, and Our Mission
August 15, 2025
Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Have questions about A Race Against Blindness or our fundraiser sweepstakes? This hub page gathers all five articles from our Trust, Transparency, and Our Mission series — covering our story, our legal compliance, our real winners, and how you can verify us.

Blog Series Hub: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 1-5 linked here.

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Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Latest Posts

Gratitude Gallery November 30, 2025
🧡 This Week’s Gratitude Gallery: Real Reviews and Experiences From Our Community

See this week’s uplifting reviews and experiences from donors whose kindness and belief in our mission fuel everything we do.

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Research November 25, 2025
Opus Genetics Treats First Participant in New Gene Therapy Trial for Retinal Disease

Opus Genetics has officially treated the first participant in its Phase 1/2 clinical trial for OPGx-001 — a new gene therapy designed for individuals with LCA5-related Leber congenital amaurosis. This milestone marks the company’s first human trial and represents another important step forward in treating inherited retinal diseases. As more early-stage therapies enter clinical testing, hope continues to grow for families affected by progressive vision loss.

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Research November 25, 2025
Foundation Fighting Blindness Opens Up Major Natural History Data for Retinal Disease Research

The Foundation Fighting Blindness has released four years of natural history data from its RUSH2A study, giving researchers open access to valuable insights into USH2A-related retinitis pigmentosa and Usher syndrome. This unprecedented data release is expected to accelerate clinical trial development and advance treatments for inherited retinal diseases.

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Community Stories November 25, 2025
Lighting the Way Forward: How Paratriathlete Owen Cravens Is Racing Toward His Dreams With Stargardt Disease

Discover the story of paratriathlete Owen Cravens, who continues to compete, excel, and inspire despite vision loss from Stargardt disease. His determination and heart celebrate what’s possible for anyone facing retinal conditions.

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Gratitude Gallery November 24, 2025
Gratitude in Motion: Real Reviews and Experiences From a Community Lifting Us Higher

This Thanksgiving week, we’re honoring the power of community gratitude through real reviews and experiences shared by supporters who have encouraged, uplifted, and inspired our family. These heartfelt messages—from donors, parents, and individuals living with visual challenges—remind us that we’re not walking this journey alone. Their compassion fuels our mission to advance sight-saving science for children like Luke.

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