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5.0 Top Rating OUR SON IS GOING BLIND. We were told there was nothing we could do about it. As parents, we found the diagnosis heart-wrenching. We felt hopeless and helpless at the same time. After processing the news for a while, we felt that we needed to do something—we needed to take action. That’s what led us to form our non-profit, A Race Against Blindness. Undeterred by the odds against us, we set out to find a cure. We set out to connect with researchers, trying to find out – is anyone working on this? Is anybody making headway on the problem of retinitis pigmentosa caused by Bardet-Biedl syndrome? Now we have connected with leading researchers and clinicians in the US and UK who are doing ground breaking research for BBS and retinitis pigmentosa. We Have A Plan . In a short period of time, we went from having no hope for treatment for our son’s condition to the prospect of sight-saving therapy for him and thousands of children all over the world. We have a plan. We have something we’re working towards, and this is a potential therapy. Our non-profit went from having a dream t