Undeterred by the odds against us, we set out to find a cure.
We set out to connect with researchers, trying to find out – is anyone working on this? Is anybody making headway on the problem of retinitis pigmentosa caused by Bardet-Biedl syndrome? Now we have connected with leading researchers and clinicians in the US and UK who are doing ground breaking research for BBS and retinitis pigmentosa.
We Have A Plan
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In a short period of time, we went from having no hope for treatment for our son’s condition to the prospect of sight-saving therapy for him and thousands of children all over the world. We have a plan. We have something we’re working towards, and this is a potential therapy. Our non-profit went from having a dream to the reality of being able to help fund sight-saving therapy. We’ve been moving so fast to get to this place, with all our efforts focused on maximizing available funding for clinical trials.
Our Fundraising Goals
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With your help, we’re on the cusp of being able to potentially save the sight of children suffering from RP/BBS1. 1 million dollars is our first major fundraising milestone as a nonprofit which will be able to make an immediate impact on the ability to begin a potential clinical trial.