Why We Run Multiple Fundraisers

At A Race Against Blindness , one of the most common questions we receive is: “Why do you have so many fundraisers running at once?” It’s a fair question, and we want to answer it openly. The Urgency of Time Bardet-Biedl Syndrome (BBS), the rare disease that affects our son and many others in the community, causes progressive vision loss. Children with BBS and related conditions lose retinal cells every single day , often reaching blindness in their teens. The gene therapy we’re working so hard to fund only works if there is vision left to preserve . That’s why the clock is ticking—and why we fundraise with urgency. Why Multiple Fundraisers Instead of holding one fundraiser per year, we run multiple campaigns throughout the year. Here’s why: Faster progress : Each fundraiser helps us raise the resources needed to advance research toward clinical trials without waiting months in between. Broader reach : Different campaigns appeal to different people. Some supporters are excited about overland vehicles, others about dream vans, and others about unique experiences. Every campaign is ano