Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2025

$2.1M

September
$1M
December
$1.1M

Supported clinical trial application, preparation and funding through the first year of the trial after approval.

2024

$3M

October
$1M
December
$2M

Supported pre-clinical work included dose ranging studies and therapeutic manufacturing.

2024

$3M

October
$1M
December
$2M

Supported pre-clinical work included dose ranging studies and therapeutic manufacturing.

2024

$3M

October
$1M
December
$2M

Supported pre-clinical work included dose ranging studies and therapeutic manufacturing.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

March 13, 2024
Diagnostic Process for Bardet-Biedl Syndrome

Bardet-Biedl Syndrome (BBS) manifests through a combination of symptoms, which can vary in severity among affected individuals. Common symptoms include vision problems (retinal degeneration leading to blindness), obesity, polydactyly (extra fingers or toes), kidney abnormalities, intellectual disabilities, and reproductive issues.

Read More
March 13, 2024
The Genetic Variants of Bardet-Biedl Syndrome
Read More
March 13, 2024
BBS-Associated Vision Loss
Read More