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Follow A Race Against Blindness research funding, inherited retinal disease developments, community stories, grant announcements, and updates from families racing toward sight-saving treatments.
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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)
Newly added funding closes critical gap and enables planned trial initiation in early 2026
Latest Posts
Real Winners. Real Prizes. Real Impact.
Blog Series: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness Article 3: Winners & Where to Find Them
Hope on the Horizon: Breakthrough Phase 2 Results for Stargardt Disease Therapy
A groundbreaking Phase 2 trial has shown the first-ever vision improvements in people with Stargardt disease — a condition with no approved treatment. Nanoscope Therapeutics’ gene-agnostic MCO-010 therapy produced meaningful gains in vision without serious side effects, paving the way for a pivotal Phase 3 trial starting in 2025.
Fundraiser Sweepstakes Explained: Legal, Fair, and Open to Everyone
Blog Series: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness Article 2: How Our Fundraiser Sweepstakes Work — And Why They’re 100% Legal
What is Bardet-Biedl Syndrome?
Treatment options for Bardet-Biedl Syndrome