2024 RAB Annual Report - Key Insights and Highlights

Welcome Message Meet The Team Our Mission Retinitis Pigmentosa: A Global Disease 2024: A Year of Impact Partnerships Financial Overview Racing Ahead Download Download 2024 Report" 2024 RAB Annual Report Download Report WELCOME MESSAGE Dear Friends, As we reflect on this incredible year, we are overwhelmed with gratitude for your support and inspired by the milestones we've achieved together in 2024. A Race Against Blindness began as a mission born from our son Luke’s diagnosis with Bardet-Biedl Syndrome (BBS). Watching Luke’s vision fade, we knew we had to act—not just for Luke, but for all children at risk of losing their sight to rare genetic disorders. This year marks a pivotal moment in our journey: On October 15, 2024, we awarded our first $1 million grant to support a potentially groundbreaking planned clinical trial with Axovia Therapeutics. We made a second $2 million grant to the same planned clinical trial at the end of December for a total of $3 million in funding. The potential clinical trial represents hope for children and families affected by BBS/RP and is a powerful s