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Follow A Race Against Blindness research funding, inherited retinal disease developments, community stories, grant announcements, and updates from families racing toward sight-saving treatments.
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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)
Newly added funding closes critical gap and enables planned trial initiation in early 2026
Latest Posts
Comprehensive U.S. Directory of Pediatric Retinal Disease Centers
This directory highlights premier institutions across the United States with specialized programs for diagnosing and managing pediatric inherited retinal diseases (IRDs) such as retinitis pigmentosa, Stargardt disease, Leber congenital amaurosis, and Bardet-Biedl Syndrome. Each listing includes the center’s website and contact information.
Common Symptoms of Bardet-Biedl Syndrome
Aiding in making the diagnosis of Bardet-Biedl Syndrome
A Family’s Race To Treat Childhood Blindness: A Race Against Blindness Grants $1 Million to Bardet-Biedl Syndrome Research
The Genetic Variants of Bardet-Biedl Syndrome