Comprehensive U.S. Directory of Pediatric Retinal Disease Centers

Comprehensive U.S. Directory of Pediatric Retinal Disease Centers

Academic, Private, and Specialized Institutions with Expertise in Inherited Retinal Disorders

This directory highlights premier institutions across the United States with specialized programs for diagnosing and managing pediatric inherited retinal diseases (IRDs) such as retinitis pigmentosa, Stargardt disease, Leber congenital amaurosis, and Bardet-Biedl Syndrome. Each listing includes the center’s website and contact information.

We have no affiliation with these institutions, and this list is not all-inclusive but is provided as a resource to aid in locating potential centers to receive specialized care.

 

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Alabama

• University of Alabama at Birmingham – Department of Ophthalmology and Visual Sciences
  Website | Contact

California

• UCSF Benioff Children’s Hospitals – Pediatric Ophthalmology
  Website

• Stanford Byers Eye Institute
  Website | Contact

Colorado

• Children's Hospital Colorado – Ophthalmology Department
  Website | Contact

District of Columbia

• Children's National Hospital – Division of Ophthalmology
  Website | Contact

Florida

• Bascom Palmer Eye Institute – University of Miami
  Website | Contact

Georgia

• Emory Eye Center – Pediatric Ophthalmology
  Website | Contact

Illinois

• Lurie Children’s Hospital of Chicago – Pediatric Ophthalmology
  Website | Contact

Indiana

• Riley Hospital for Children at IU Health – Ophthalmology
  Website | Contact

Louisiana

• Ochsner Hospital for Children – Pediatric Ophthalmology
  Website | Contact

Maryland

• Wilmer Eye Institute – Johns Hopkins Medicine
  Website | Contact

Massachusetts

• Boston Children’s Hospital – Inherited Retinal Disorders Program
  Website | Contact

• Massachusetts Eye and Ear
  Website | Contact

Michigan

• C.S. Mott Children's Hospital – Pediatric Ophthalmology
  Website | Contact

Minnesota

• Mayo Clinic – Department of Ophthalmology
  Website | Contact

• University of Minnesota Masonic Children’s Hospital
  Website | Contact

Missouri

• St. Louis Children's Hospital – Ophthalmology
  Website | Contact

New York

• Columbia University – Edward S. Harkness Eye Institute
  Website

• New York Eye and Ear Infirmary of Mount Sinai
  Website | Contact

North Carolina

• Duke Eye Center – Duke Health
  Website | Contact

Ohio

• Cleveland Clinic – Cole Eye Institute
  Website | Contact

• Nationwide Children's Hospital – Ophthalmology
  Website | Contact

Oregon

• Casey Eye Institute – Oregon Health & Science University (OHSU)
  Website | Contact

Pennsylvania

• Children’s Hospital of Philadelphia (CHOP)
  Website | Contact

• University of Pittsburgh – UPMC Eye Center
  Website | Contact

Tennessee

• Vanderbilt Children's Hospital – Pediatric Ophthalmology
  Website | Contact

Texas

• Texas Children’s Hospital – Ophthalmology
  Website | Contact

• Houston Methodist – Blanton Eye Institute
  Website | Contact

Utah

• John A. Moran Eye Center – University of Utah
  Website | Contact

Washington

• Seattle Children's Hospital – Ophthalmology
  Website | Contact