Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2026

$1.1M

January
$1.1M

To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026.

2025

$1M

September
$1M

To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.

2024

$3M

October
$1M
December
$2M

To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

Gratitude Gallery December 24, 2025
🧡 Gratitude Gallery: A Christmas Miracle in the Making

This special Gratitude Gallery shares real reviews and experiences from our community following a Christmas Eve message—expressions of hope, faith, and belief in miracles unfolding.

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Gratitude Gallery December 24, 2025
🧡 Gratitude Gallery: New Reviews & Experiences From Our Community

This Gratitude Gallery shares real reviews and experiences from our community—honest messages of hope, faith, and resilience that remind us why this mission matters.

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Gratitude Gallery November 30, 2025
🧡 This Week’s Gratitude Gallery: Real Reviews and Experiences From Our Community

See this week’s uplifting reviews and experiences from donors whose kindness and belief in our mission fuel everything we do.

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Gratitude Gallery November 24, 2025
Gratitude in Motion: Real Reviews and Experiences From a Community Lifting Us Higher

This Thanksgiving week, we’re honoring the power of community gratitude through real reviews and experiences shared by supporters who have encouraged, uplifted, and inspired our family. These heartfelt messages—from donors, parents, and individuals living with visual challenges—remind us that we’re not walking this journey alone. Their compassion fuels our mission to advance sight-saving science for children like Luke.

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