Non-profit funding sight-saving research for children
Stories of Hope
Follow A Race Against Blindness research funding, inherited retinal disease developments, community stories, grant announcements, and updates from families racing toward sight-saving treatments.
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University College London named Dr. Victor Hernandez, co-founder of Axovia Therapeutics, to its 200 Faces. In thanking the people behind his gene therapy for Bardet-Biedl syndrome, he singled out A Race Against Blindness.
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Every dollar below has been paid out to research, made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.
total research funding, fully paid out · as of October 2026
$3M awarded
To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.
$1M awarded
To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.
$2.1M awarded
To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026; and, through a grant to the Foundation Fighting Blindness, to fund early-stage gene therapy research with Dr. Thomas Mendel and gene-agnostic therapy (NACA) aimed at slowing vision loss in RP. A matched donor brought in an additional $775,000, bringing the total impact of that grant round to $1.55M.
This Gratitude Gallery shares real reviews and experiences from our community—honest messages of hope, faith, and resilience that remind us why this mission matters.
Read moreThis special Gratitude Gallery shares real reviews and experiences from our community following a Christmas Eve message—expressions of hope, faith, and belief in miracles unfolding.
Read moreSee this week’s uplifting reviews and experiences from donors whose kindness and belief in our mission fuel everything we do.
Read moreThis Thanksgiving week, we’re honoring the power of community gratitude through real reviews and experiences shared by supporters who have encouraged, uplifted, and inspired our family. These heartfelt messages—from donors, parents, and individuals living with visual challenges—remind us that we’re not walking this journey alone. Their compassion fuels our mission to advance sight-saving science for children like Luke.
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