Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2026

$1.1M

January
$1.1M

To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026.

2025

$1M

September
$1M

To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.

2024

$3M

October
$1M
December
$2M

To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

is RAB legit? June 20, 2026
More Than a Ford Raptor: Why Innovative Fundraising Matters in Rare Disease Research

A recent independent article explored an important question: Why would a childhood blindness nonprofit give away a Ford Raptor? This article explains how innovative fundraising helps accelerate rare disease research, clinical trials, and hope for families affected by inherited retinal diseases.

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Gratitude Gallery May 08, 2026
More Than Pokémon: A Gratitude Gallery From Our Community 💛

A Race Against Blindness shares heartfelt messages from supporters during the Pokémon fundraiser — highlighting the powerful stories, gratitude, and human connection behind the mission.

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is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Independent Media Coverage Tells the Story

Independent journalists across the country have shared the story of A Race Against Blindness. Explore verified local and national media coverage that helps answer one important question: is A Race Against Blindness legit?

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is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Listen to the People Who’ve Walked This Journey With Us

Is a race against blindness legit? Hear how real families, supporters, and winners validate our mission through trust and involvement.

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is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Why We Run More Than One Fundraiser at a Time

Is a race against blindness legit? Learn why running multiple fundraisers helps accelerate research without sacrificing transparency.

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