News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)
Trust, Transparency, and Our Mission
August 15, 2025
Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Have questions about A Race Against Blindness or our fundraiser sweepstakes? This hub page gathers all five articles from our Trust, Transparency, and Our Mission series — covering our story, our legal compliance, our real winners, and how you can verify us.

Blog Series Hub: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 1-5 linked here.

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Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Grant History

  1. October 2024 - $1M
  2. December 2024 - $2M
  3. September 2025 - $1M
  4. December 2025 - $1.1M

This $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Latest Posts

September 19, 2025
Beyond Fundraising: How Our Ads Build Awareness and Community

💡 Awareness Through Advertising
Our ad campaigns are about more than prizes. They spark awareness for Bardet-Biedl Syndrome, connect us daily with families across rare disease and vision loss communities, and help lift up the work of other nonprofits. Every ad is a chance to build awareness, connection, and impact.

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September 01, 2025
Why We Run Multiple Fundraisers

Some wonder why we host several fundraisers each year. The answer is urgency: children with Bardet-Biedl Syndrome are losing vision every day. Running multiple campaigns helps us raise funds quickly, reach more people, and keep hope alive for sight-saving research.

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August 25, 2025
How Our Fundraiser Sweepstakes Work — Step-by-Step Transparency

Ever wondered how our sweepstakes winners are chosen? This article walks you through our process, from third-party administration to prize delivery, and shows you how you can enter without making a donation.

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August 25, 2025
How We Keep Your Information Safe in Our Fundraisers

Your trust matters. In this article, we explain how we process donations securely, protect your personal data, and ensure safe participation in our fundraisers.

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