Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2025

$2.1M

September
$1M
December
$1.1M

Supported clinical trial application, preparation and funding through the first year of the trial after approval.

2024

$3M

October
$1M
December
$2M

Supported pre-clinical work included dose ranging studies and therapeutic manufacturing.

2024

$3M

October
$1M
December
$2M

Supported pre-clinical work included dose ranging studies and therapeutic manufacturing.

2024

$3M

October
$1M
December
$2M

Supported pre-clinical work included dose ranging studies and therapeutic manufacturing.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

August 21, 2025
Founder Spotlight: Dr. Steve Johnston, MD, MBA

🌟 Founder Spotlight: Steve Johnston, MD, MBA
Steve donated the very first van that launched our sweepstakes, and he continues to lead with dedication as a father, physician, and entrepreneur. Still working full-time as a radiologist and taking no salary, Steve devotes his days to building A Race Against Blindness and driving hope for families affected by Bardet-Biedl Syndrome.

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August 15, 2025
Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Have questions about A Race Against Blindness or our fundraiser sweepstakes? This hub page gathers all five articles from our Trust, Transparency, and Our Mission series — covering our story, our legal compliance, our real winners, and how you can verify us.

Blog Series Hub: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 1-5 linked here.

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August 15, 2025
Verifying Our Legitimacy: Your Guide to Checking Any Charity

Blog Series: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 5: Our Commitment to Transparency & How You Can Verify Us

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August 15, 2025
Why We Chose Sweepstakes Fundraising — And How It Changes Lives

Blog Series: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 4: Why We Use Fundraiser Sweepstakes to Advance Our Mission

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August 15, 2025
Real Winners. Real Prizes. Real Impact.

Blog Series: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 3: Winners & Where to Find Them

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