Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2026

$1.1M

January
$1.1M

To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026.

2025

$1M

September
$1M

To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.

2024

$3M

October
$1M
December
$2M

To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

Read More
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

August 25, 2025
Behind the Scenes: How We Operate at A Race Against Blindness

We know trust is earned. That’s why we created this 6-part Behind the Scenes series to show exactly how A Race Against Blindness operates — from how winners are chosen, to where donations go, to how we keep your data safe. Learn about our processes, our funding, and our commitment to transparency.

Read More
August 25, 2025
Our Commitment to Transparency — How to Verify Us

Transparency is at our core. Here’s how you can verify our nonprofit status, read our annual reports, and see independent recognition from trusted organizations.

Read More
August 25, 2025
From Donation to Discovery: How We Fund Life-Changing Research

Every fundraiser we run has one ultimate purpose: funding research that can save and restore vision. This article shows how your donation moves from entry to lab. 

Read More
August 25, 2025
Why You See Our Fundraiser Ads — And How It Helps Our Mission

If you’ve seen our ads online, that’s intentional — it means our mission to fight blindness is reaching more people. Learn why advertising is a key investment in awareness and fundraising.

Read More
August 25, 2025
Where Your Donation Goes: Funding Research, Prizes, and Awareness

We take donor stewardship seriously. See exactly how your contributions are used to advance research, raise awareness, and deliver prizes to sweepstakes winners — with full transparency. 

Read More