Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2026

$1.1M

January
$1.1M

To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026.

2025

$1M

September
$1M

To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.

2024

$3M

October
$1M
December
$2M

To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

Community Stories June 17, 2026
💙 For The Dads Who Show Up

A Father's Day thank you to the dads, grandfathers, and father figures who quietly carry so much for their families. Enter our free Father's Day Giveaway and help us celebrate the men who show up every day.

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Community Stories May 24, 2026
Mother's Day Follow-up: The Heart of This Community (3 of 3)

What began as a Mother’s Day giveaway became something much bigger — a reminder of the kindness, generosity, and heart within the A Race Against Blindness community.

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Community Stories May 24, 2026
Mother's Day Follow-up: Stories of Love, Loss & Resilience (2 of 3)

Some stories were beautiful. Some were heartbreaking. Many were both. A reflection on the strength and love carried by mothers through life’s hardest seasons.

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Community Stories May 24, 2026
Mother's Day Follow-up: The Moms Who Never Stop Showing Up (1 of 3)

A tribute to the mothers who quietly carry so much behind the scenes — advocating, caregiving, researching, and continuing to show up through every challenge.

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Community Stories May 05, 2026
For the Moms Who Carry So Much 🧡

A heartfelt Mother’s Day giveaway honoring the strength and resilience of moms in our community. Enter to win a curated gift basket and share your story.

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