Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2026

$1.1M

January
$1.1M

To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026.

2025

$1M

September
$1M

To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.

2024

$3M

October
$1M
December
$2M

To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

Community Stories March 16, 2026
Two Winners, One Drive for Vision Research
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Community Stories February 01, 2026
Feeling the Game: How New Tactile Technology Is Changing Sports for Blind Fans

New tactile technology is transforming how blind and low-vision fans experience live sports. This article explores how innovation is expanding access, independence, and inclusion — and why moments like these matter for families navigating vision loss today.

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About BBS December 24, 2025
BBS1 Gene Therapy Clinical Trial Receives MHRA Approval: A Major Milestone for the BBS Community
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Community Stories November 25, 2025
Lighting the Way Forward: How Paratriathlete Owen Cravens Is Racing Toward His Dreams With Stargardt Disease

Discover the story of paratriathlete Owen Cravens, who continues to compete, excel, and inspire despite vision loss from Stargardt disease. His determination and heart celebrate what’s possible for anyone facing retinal conditions.

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October 10, 2025
Redefining Vision: Tucson’s Taylor Talbot and the Power of Possibility
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