News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)
Trust, Transparency, and Our Mission
August 15, 2025
Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Have questions about A Race Against Blindness or our fundraiser sweepstakes? This hub page gathers all five articles from our Trust, Transparency, and Our Mission series — covering our story, our legal compliance, our real winners, and how you can verify us.

Blog Series Hub: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 1-5 linked here.

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Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Grant History

  1. October 2024 - $1M
  2. December 2024 - $2M
  3. September 2025 - $1M
  4. December 2025 - $1.1M

This $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Latest Posts

About BBS December 24, 2025
BBS1 Gene Therapy Clinical Trial Receives MHRA Approval: A Major Milestone for the BBS Community
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Community Stories November 25, 2025
Lighting the Way Forward: How Paratriathlete Owen Cravens Is Racing Toward His Dreams With Stargardt Disease

Discover the story of paratriathlete Owen Cravens, who continues to compete, excel, and inspire despite vision loss from Stargardt disease. His determination and heart celebrate what’s possible for anyone facing retinal conditions.

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October 10, 2025
Redefining Vision: Tucson’s Taylor Talbot and the Power of Possibility
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