Non-profit funding sight-saving research for children
Stories of Hope
Follow A Race Against Blindness research funding, inherited retinal disease developments, community stories, grant announcements, and updates from families racing toward sight-saving treatments.
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University College London named Dr. Victor Hernandez, co-founder of Axovia Therapeutics, to its 200 Faces. In thanking the people behind his gene therapy for Bardet-Biedl syndrome, he singled out A Race Against Blindness.
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Every dollar below has been paid out to research, made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.
total research funding, fully paid out · as of October 2026
$3M awarded
To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.
$1M awarded
To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.
$2.1M awarded
To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026; and, through a grant to the Foundation Fighting Blindness, to fund early-stage gene therapy research with Dr. Thomas Mendel and gene-agnostic therapy (NACA) aimed at slowing vision loss in RP. A matched donor brought in an additional $775,000, bringing the total impact of that grant round to $1.55M.
A tribute to the mothers who quietly carry so much behind the scenes — advocating, caregiving, researching, and continuing to show up through every challenge.
Read moreWhat began as a Mother’s Day giveaway became something much bigger — a reminder of the kindness, generosity, and heart within the A Race Against Blindness community.
Read moreSome stories were beautiful. Some were heartbreaking. Many were both. A reflection on the strength and love carried by mothers through life’s hardest seasons.
Read moreA heartfelt Mother’s Day giveaway honoring the strength and resilience of moms in our community. Enter to win a curated gift basket and share your story.
Read moreA few years after El Tour first shared their story, A Race Against Blindness returns to Southern Arizona for El Tour de Zona. This personal reflection explores progress, purpose, and why the ride still matters.
Read moreNew tactile technology is transforming how blind and low-vision fans experience live sports. This article explores how innovation is expanding access, independence, and inclusion — and why moments like these matter for families navigating vision loss today.
Read moreDiscover the story of paratriathlete Owen Cravens, who continues to compete, excel, and inspire despite vision loss from Stargardt disease. His determination and heart celebrate what’s possible for anyone facing retinal conditions.
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