Non-profit funding sight-saving research for children
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Follow A Race Against Blindness research funding, inherited retinal disease developments, community stories, grant announcements, and updates from families racing toward sight-saving treatments.
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University College London named Dr. Victor Hernandez, co-founder of Axovia Therapeutics, to its 200 Faces. In thanking the people behind his gene therapy for Bardet-Biedl syndrome, he singled out A Race Against Blindness.
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Every dollar below has been paid out to research, made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.
total research funding, fully paid out · as of October 2026
$3M awarded
To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.
$1M awarded
To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.
$2.1M awarded
To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026; and, through a grant to the Foundation Fighting Blindness, to fund early-stage gene therapy research with Dr. Thomas Mendel and gene-agnostic therapy (NACA) aimed at slowing vision loss in RP. A matched donor brought in an additional $775,000, bringing the total impact of that grant round to $1.55M.
Is A Race Against Blindness legit? This article explains what it meant for our organization to be featured at Toyota’s National Dealers Meeting, why that level of recognition matters, and how corporate validation strengthens trust in our mission to fight vision loss.
Read moreThis article explains how our nonprofit funds real research, why early grant support matters in rare disease, and how families can independently verify the impact of our work. We walk through where the money goes, why grant funding accelerates treatments, and how transparency is built into everything we do.
Read moreIs a race against blindness legit? Hear how real families, supporters, and winners validate our mission through trust and involvement.
Read moreIndependent journalists across the country have shared the story of A Race Against Blindness. Explore verified local and national media coverage that helps answer one important question: is A Race Against Blindness legit?
Read moreIs A Race Against Blindness legit? We hear this question often — and we welcome it. This hub article brings together a series of short, transparent posts that answer that question honestly and thoroughly. From our nonprofit status and third-party sweepstakes administration, to our grants, sponsors, patient advocacy work, and real community reviews, we walk through the facts that matter most. Whether you’re considering donating, entering a fundraiser, or simply learning more about our mission, this resource exists to help you make an informed decision — with clarity, context, and confidence.
Read moreIs a race against blindness legit? Learn how our publicly available annual reports provide transparency, accountability, and real insight into our mission.
Read moreIs a race against blindness legit? Learn why urgency matters when vision loss is progressive and early treatment is critical.
Read moreIs A Race Against Blindness legit? In this article, we share the deeply personal reason behind our urgency. Founded by parents of a child with Bardet-Biedl Syndrome, our mission is driven by the reality that vision loss is happening every day—and treatments can only help if there’s sight left to save. This is why we move fast, fundraise often, and stay focused on accelerating progress now.
Read moreIs A Race Against Blindness legit? One of the clearest answers lies in who supports our mission. In this article, we share how respected sponsors—including national brands like Toyota—help validate our work, expand awareness, and strengthen trust in our nonprofit’s mission to accelerate vision-saving research.
Read moreIs a race against blindness legit? Learn how real winners, public announcements, and transparent prize delivery prove our fundraisers are exactly what they claim to be.
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