Is A Race Against Blindness Legit? Because This Mission Is Personal

When people search “is A Race Against Blindness legit?” they’re often trying to understand one thing: why we do this, and whether it’s real. For us, the answer is simple—and deeply personal. A Race Against Blindness exists because our son is losing his vision. He has Bardet-Biedl Syndrome (BBS), a rare genetic condition that causes progressive retinal degeneration . Like many children with BBS-related retinitis pigmentosa, he is losing photoreceptor cells every single day. There is no pause button. There is no waiting until the timing feels convenient. This isn’t an abstract cause for our family. It’s our daily reality. 👉 Watch Our Story This Isn’t a “Side Passion” — It’s Our Life A Race Against Blindness wasn’t created as a fundraising idea first. It was created out of urgency. When you learn that your child will likely go blind as a teenager, the question becomes painfully clear: How fast can we move? Not someday. Not eventually. Now . Gene therapy and emerging treatments can only help if there is still vision left to preserve. Once those cells are gone, they’re gone. That reality