News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)
Trust, Transparency, and Our Mission
August 15, 2025
Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Have questions about A Race Against Blindness or our fundraiser sweepstakes? This hub page gathers all five articles from our Trust, Transparency, and Our Mission series — covering our story, our legal compliance, our real winners, and how you can verify us.

Blog Series Hub: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 1-5 linked here.

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Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Grant History

  1. October 2024 - $1M
  2. December 2024 - $2M
  3. September 2025 - $1M
  4. December 2025 - $1.1M

This $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Latest Posts

Grant Announcements January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

Read More
Gratitude Gallery December 24, 2025
🧡 Gratitude Gallery: A Christmas Miracle in the Making

This special Gratitude Gallery shares real reviews and experiences from our community following a Christmas Eve message—expressions of hope, faith, and belief in miracles unfolding.

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About BBS December 24, 2025
BBS1 Gene Therapy Clinical Trial Receives MHRA Approval: A Major Milestone for the BBS Community
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Gratitude Gallery December 24, 2025
🧡 Gratitude Gallery: New Reviews & Experiences From Our Community

This Gratitude Gallery shares real reviews and experiences from our community—honest messages of hope, faith, and resilience that remind us why this mission matters.

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Research December 24, 2025
Beacon Therapeutics Treats First Patient in New Gene Therapy Trial for X-Linked Retinitis Pigmentosa

Beacon Therapeutics has treated the first patient in a new clinical trial evaluating bilateral gene therapy for X-linked retinitis pigmentosa. This milestone builds on encouraging earlier data and represents continued momentum in retinal gene therapy research — bringing renewed hope to families affected by inherited retinal diseases.

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