Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2026

$1.1M

January
$1.1M

To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026.

2025

$1M

September
$1M

To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.

2024

$3M

October
$1M
December
$2M

To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

Community Stories May 24, 2026
Mother's Day Follow-up: The Heart of This Community (3 of 3)

What began as a Mother’s Day giveaway became something much bigger — a reminder of the kindness, generosity, and heart within the A Race Against Blindness community.

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Community Stories May 24, 2026
Mother's Day Follow-up: Stories of Love, Loss & Resilience (2 of 3)

Some stories were beautiful. Some were heartbreaking. Many were both. A reflection on the strength and love carried by mothers through life’s hardest seasons.

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Community Stories May 24, 2026
Mother's Day Follow-up: The Moms Who Never Stop Showing Up (1 of 3)

A tribute to the mothers who quietly carry so much behind the scenes — advocating, caregiving, researching, and continuing to show up through every challenge.

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Gratitude Gallery May 08, 2026
More Than Pokémon: A Gratitude Gallery From Our Community 💛

A Race Against Blindness shares heartfelt messages from supporters during the Pokémon fundraiser — highlighting the powerful stories, gratitude, and human connection behind the mission.

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Community Stories May 05, 2026
For the Moms Who Carry So Much 🧡

A heartfelt Mother’s Day giveaway honoring the strength and resilience of moms in our community. Enter to win a curated gift basket and share your story.

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