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A Race Against Blindness Featured Twice in the Foundation Fighting Blindness Newsletter

A Race Against Blindness Featured Twice in the Foundation Fighting Blindness Newsletter

Two features in one Foundation Fighting Blindness newsletter

The Foundation Fighting Blindness is one of the most respected names in vision research. So when its November-December 2026 newsletter landed in inboxes this week with A Race Against Blindness (RAB) in it twice, our whole team stopped to take it in.

The first feature sits in the Foundation News section. It shares our Blindness Awareness Month story, A Race Against Blindness Celebrates Recent Fundraiser Winners, which introduces the people who won our recent fundraisers and shows how this community is helping advance research for inherited retinal diseases.

The second is a full episode of the Foundation's podcast, Eye on the Cure, with our co-founder as the guest.

Dr. Stephen Johnston on the Eye on the Cure podcast

Eye on the Cure Episode 105: A Race Against Blindness was released on November 4, 2026. Host Maddie Mossman sat down with Dr. Stephen Johnston, co-founder of RAB, for a conversation that works as a complete summary of who we are:

  • Where we started. Stephen talks about his son Luke's diagnosis with Bardet-Biedl syndrome, a rare genetic condition that causes progressive vision loss.
  • Why we started. That diagnosis led our family to start a nonprofit and to turn vehicle fundraisers into funding for research on potential treatments.
  • What we have accomplished. Our supporters have made $6.1 million in research grants possible, alongside a growing partnership with the Foundation that includes RAB's $1 million commitment to gene-agnostic therapeutic approaches announced in June 2026.
  • What comes next. RAB will keep supporting Bardet-Biedl syndrome research of all kinds, and will keep funding gene-agnostic vision loss research so the impact reaches as many causes of blindness and inherited retinal disease as possible.
  • Why we keep pushing. RAB has already helped fund the clinical trial for Luke's condition. Stephen explains why that was never the finish line, and why we keep going for every other family facing childhood blindness.

You can watch the full conversation on YouTube. If you prefer audio, the episode also plays on the Foundation's episode page.


Why this matters to our supporters

RAB exists to fund rare disease research and gene-agnostic therapies for childhood blindness. To date, our supporters have made $6.1 million in research grants possible, and those funds are at work in real, moving clinical research.

Being featured by the Foundation Fighting Blindness matters because it is independent. The Foundation has spent decades funding retinal disease research, and it chose to share our story with its own community of families, researchers and donors. For anyone who has entered one of our fundraisers or donated, that is one more outside source confirming where the impact goes.

It also matters to families living with vision loss. Progress in this field depends on organizations working together, and this partnership is one example of that happening.

Watch, listen and read

Thank you to the Foundation Fighting Blindness for sharing our story, and to every supporter who makes this research possible.