Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2026

$1.1M

January
$1.1M

To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026.

2025

$1M

September
$1M

To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.

2024

$3M

October
$1M
December
$2M

To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

September 19, 2025
A Major Step Forward: Ocugen Launches Phase 2/3 Trial of OCU410ST for Stargardt Disease

🚀 Hope for Stargardt Disease
Ocugen has announced FDA clearance to begin a Phase 2/3 trial of OCU410ST, a groundbreaking modifier gene therapy for Stargardt disease. Early results show slowed disease progression and vision improvements, bringing real hope to the 1 million people worldwide affected by this inherited condition.

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September 19, 2025
Breaking Down a Breakthrough: A New Way to Help the Eye Heal Itself

Scientists have discovered that blocking a protein called Prox1 may allow the eye to repair itself. This breakthrough could open the door to regenerative therapies for vision loss caused by diseases like retinitis pigmentosa.

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September 19, 2025
Beyond Fundraising: How Our Ads Build Awareness and Community

💡 Awareness Through Advertising
Our ad campaigns are about more than prizes. They spark awareness for Bardet-Biedl Syndrome, connect us daily with families across rare disease and vision loss communities, and help lift up the work of other nonprofits. Every ad is a chance to build awareness, connection, and impact.

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September 19, 2025
Long-Term Results Show Promise for MCO-010 in Retinitis Pigmentosa

🌟 Long-Term Results Show Promise for RP Therapy
At the 2025 ASRS meeting, researchers shared 2-year results showing that MCO-010, an optogenetic therapy, provided lasting vision improvements for patients with advanced retinitis pigmentosa. Unlike traditional gene therapies, MCO-010 is gene-agnostic, meaning it could help a broad range of patients regardless of mutation.

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September 19, 2025
First Patients Treated in New jCell Clinical Trial for Retinitis Pigmentosa

First Patients Treated in jCell RP Trial
jCyte has launched its Phase 2 JC02-88 trial testing jCell, a potential regenerative therapy for retinitis pigmentosa. This study could bring the first treatment option to the majority of RP patients, offering hope across all genetic subtypes.

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