News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

Read More
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)
Trust, Transparency, and Our Mission
August 15, 2025
Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Have questions about A Race Against Blindness or our fundraiser sweepstakes? This hub page gathers all five articles from our Trust, Transparency, and Our Mission series — covering our story, our legal compliance, our real winners, and how you can verify us.

Blog Series Hub: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 1-5 linked here.

Read More
Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Grant History

  1. October 2024 - $1M
  2. December 2024 - $2M
  3. September 2025 - $1M
  4. December 2025 - $1.1M

This $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Latest Posts

September 19, 2025
Hope in Focus: 24-Month Results from the SKYLINE Gene Therapy Trial for X-Linked Retinitis Pigmentosa

✨ New Hope for XLRP Patients
The SKYLINE Phase 2 trial of laruzova, a gene therapy for X-linked retinitis pigmentosa, has shown promising vision improvements at 24 months. With the pivotal VISTA Phase 3 trial now fully enrolled, this breakthrough research moves us one step closer to potential treatment for this rare inherited blindness.

Read More
September 19, 2025
A Major Step Forward: Ocugen Launches Phase 2/3 Trial of OCU410ST for Stargardt Disease

🚀 Hope for Stargardt Disease
Ocugen has announced FDA clearance to begin a Phase 2/3 trial of OCU410ST, a groundbreaking modifier gene therapy for Stargardt disease. Early results show slowed disease progression and vision improvements, bringing real hope to the 1 million people worldwide affected by this inherited condition.

Read More
September 19, 2025
Breaking Down a Breakthrough: A New Way to Help the Eye Heal Itself

Scientists have discovered that blocking a protein called Prox1 may allow the eye to repair itself. This breakthrough could open the door to regenerative therapies for vision loss caused by diseases like retinitis pigmentosa.

Read More
September 19, 2025
Beyond Fundraising: How Our Ads Build Awareness and Community

💡 Awareness Through Advertising
Our ad campaigns are about more than prizes. They spark awareness for Bardet-Biedl Syndrome, connect us daily with families across rare disease and vision loss communities, and help lift up the work of other nonprofits. Every ad is a chance to build awareness, connection, and impact.

Read More
September 19, 2025
Long-Term Results Show Promise for MCO-010 in Retinitis Pigmentosa

🌟 Long-Term Results Show Promise for RP Therapy
At the 2025 ASRS meeting, researchers shared 2-year results showing that MCO-010, an optogenetic therapy, provided lasting vision improvements for patients with advanced retinitis pigmentosa. Unlike traditional gene therapies, MCO-010 is gene-agnostic, meaning it could help a broad range of patients regardless of mutation.

Read More