Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2026

$1.1M

January
$1.1M

To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026.

2025

$1M

September
$1M

To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.

2024

$3M

October
$1M
December
$2M

To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

Read More
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Because We Share Our Annual Reports Publicly

Is a race against blindness legit? Learn how our publicly available annual reports provide transparency, accountability, and real insight into our mission.

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is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Because Our Financials Are Public and Verifiable

Is a race against blindness legit? Learn how public nonprofit filings, financial transparency, and verifiable records support accountability and trust.

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is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Because Our Winners Are Real — and Public

Is a race against blindness legit? Learn how real winners, public announcements, and transparent prize delivery prove our fundraisers are exactly what they claim to be.

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is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Why We Run Multiple Fundraisers at the Same Time

Is a race against blindness legit? Learn why running multiple fundraisers helps sustain momentum, support research timelines, and give families real hope.

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is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Why Urgency Matters When Vision Is Being Lost Every Day

Is a race against blindness legit? Learn why urgency matters when inherited retinal diseases cause irreversible vision loss—and why timing is critical for treatment success.

Read More