News and Articles

Recent News
March 25, 2025
Comprehensive U.S. Directory of Pediatric Retinal Disease Centers

This directory highlights premier institutions across the United States with specialized programs for diagnosing and managing pediatric inherited retinal diseases (IRDs) such as retinitis pigmentosa, Stargardt disease, Leber congenital amaurosis, and Bardet-Biedl Syndrome. Each listing includes the center’s website and contact information.

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Comprehensive U.S. Directory of Pediatric Retinal Disease Centers
Trust, Transparency, and Our Mission
August 15, 2025
Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Have questions about A Race Against Blindness or our fundraiser sweepstakes? This hub page gathers all five articles from our Trust, Transparency, and Our Mission series — covering our story, our legal compliance, our real winners, and how you can verify us.

Blog Series Hub: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 1-5 linked here.

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Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Latest Posts

March 25, 2025
How is Bardet-Biedl Syndrome Inherited?
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March 25, 2025
Common Symptoms of Bardet-Biedl Syndrome
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March 25, 2025
What is Bardet-Biedl Syndrome?
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October 30, 2024
A Family’s Race To Treat Childhood Blindness: A Race Against Blindness Grants $1 Million to Bardet-Biedl Syndrome Research
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March 13, 2024
Bardet-Biedl Syndrome

Bardet-Biedl Syndrome (BBS) is a rare genetic disorder that affects multiple body systems, causing vision problems, obesity, kidney issues, extra fingers or toes, and intellectual disabilities. It is inherited in an autosomal recessive pattern and affects about 1 in 100,000 to 160,000 people worldwide. Diagnosis involves clinical evaluation and genetic testing. Current research focuses on understanding its genetic causes, studying cilia function, and developing treatments to manage its symptoms.

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