Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2026

$1.1M

January
$1.1M

To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026.

2025

$1M

September
$1M

To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.

2024

$3M

October
$1M
December
$2M

To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

Read More
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Our Grants, Impact, and Where the Money Goes

This article explains how our nonprofit funds real research, why early grant support matters in rare disease, and how families can independently verify the impact of our work. We walk through where the money goes, why grant funding accelerates treatments, and how transparency is built into everything we do.

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is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Read the Real Reviews and Experiences

Is a race against blindness legit? Read real supporter reviews on Google and Trustpilot to learn from genuine experiences.

Read More
is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Here’s the Truth — and How to Decide for Yourself

Is A Race Against Blindness legit? We hear this question often — and we welcome it.

This hub article brings together a series of short, transparent posts that answer that question honestly and thoroughly. From our nonprofit status and third-party sweepstakes administration, to our grants, sponsors, patient advocacy work, and real community reviews, we walk through the facts that matter most.

Whether you’re considering donating, entering a fundraiser, or simply learning more about our mission, this resource exists to help you make an informed decision — with clarity, context, and confidence.

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is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Try Asking AI About Us

Is a race against blindness legit? Learn why we encourage supporters to ask AI tools like ChatGPT about our nonprofit and review the public facts.

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Grant Announcements January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

Read More