Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2026

$1.1M

January
$1.1M

To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026.

2025

$1M

September
$1M

To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.

2024

$3M

October
$1M
December
$2M

To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

Read More
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Why Each Fundraiser Has Its Own Rules and Timeline

Wondering “is a race against blindness legit?” Here’s why each fundraiser has its own rules and timeline — and how that structure protects transparency, fairness, and compliance.

Read More
is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Our Toyota National Dealers Meeting Feature Explained

Is A Race Against Blindness legit? This article explains what it meant for our organization to be featured at Toyota’s National Dealers Meeting, why that level of recognition matters, and how corporate validation strengthens trust in our mission to fight vision loss.

Read More
is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Because Respected Sponsors Stand Behind the Mission

Is A Race Against Blindness legit? One of the clearest answers lies in who supports our mission. In this article, we share how respected sponsors—including national brands like Toyota—help validate our work, expand awareness, and strengthen trust in our nonprofit’s mission to accelerate vision-saving research.

Read More
is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Because This Mission Is Personal

Is A Race Against Blindness legit? In this article, we share the deeply personal reason behind our urgency. Founded by parents of a child with Bardet-Biedl Syndrome, our mission is driven by the reality that vision loss is happening every day—and treatments can only help if there’s sight left to save. This is why we move fast, fundraise often, and stay focused on accelerating progress now.

Read More
is RAB legit? January 25, 2026
Is A Race Against Blindness Legit? Why We Use a Third-Party Sweepstakes Agency

Many people searching “is A Race Against Blindness legit?” are really just looking for clarity. In this article, we explain one of the most important safeguards behind our fundraisers: our use of an independent, third-party sweepstakes agency. This agency manages entries, ensures legal compliance, and randomly selects winners—adding transparency, fairness, and accountability to every fundraiser we run. It’s one of the many ways we protect our supporters and uphold trust while working urgently to accelerate treatments for inherited retinal diseases.

Read More