News and Articles

Recent News
March 25, 2025
Comprehensive U.S. Directory of Pediatric Retinal Disease Centers

This directory highlights premier institutions across the United States with specialized programs for diagnosing and managing pediatric inherited retinal diseases (IRDs) such as retinitis pigmentosa, Stargardt disease, Leber congenital amaurosis, and Bardet-Biedl Syndrome. Each listing includes the center’s website and contact information.

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Comprehensive U.S. Directory of Pediatric Retinal Disease Centers
Trust, Transparency, and Our Mission
August 15, 2025
Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Have questions about A Race Against Blindness or our fundraiser sweepstakes? This hub page gathers all five articles from our Trust, Transparency, and Our Mission series — covering our story, our legal compliance, our real winners, and how you can verify us.

Blog Series Hub: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 1-5 linked here.

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Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Latest Posts

March 13, 2024
Diagnostic Process for Bardet-Biedl Syndrome

Bardet-Biedl Syndrome (BBS) manifests through a combination of symptoms, which can vary in severity among affected individuals. Common symptoms include vision problems (retinal degeneration leading to blindness), obesity, polydactyly (extra fingers or toes), kidney abnormalities, intellectual disabilities, and reproductive issues.

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