Where Your Donation Goes: Funding Research, Prizes, and Awareness

When you give to A Race Against Blindness — whether through a sweepstakes entry donation or any other contribution — you’re fueling a mission with a clear purpose: to fund research, raise awareness, and provide hope for families facing vision loss from rare genetic conditions. We take our responsibility to steward every dollar seriously, and we believe in showing exactly where your donations go. Our Mission in Action Our fundraising model is built to create the biggest possible impact in the shortest possible time. Rare diseases like Bardet-Biedl Syndrome (BBS) don’t have decades to wait for research funding — and our community deserves urgent action. That’s why we: Run engaging, high-visibility sweepstakes fundraisers to attract supporters from far beyond the BBS community. Partner directly with research organizations and clinical trial sponsors to fund critical work. Operated for our first two years (2023–24) with no salaries or stipends for our Board of Directors, before adding a modest salary in 2025 to allow our Co-Founder, Kristina Johnston, leave her nursing and teaching job t