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Event archive

BBS Foundation Conference 2026

Knowledge Is Hope

A gathering of families, researchers, and specialists united by a shared mission. Explore recordings and stories shared through the 2026 gathering dedicated to Bardet-Biedl Syndrome.

Watch the recapBrowse the recordings
A large group of BBS Foundation Conference attendees gathered together in the conference room.

At a glance

Hosted by
The BBS FoundationWashington DC, 2026. A Race Against Blindness attended as a sponsor and media partner.
Recordings
15 talks and 12 podcastsExpert presentations, Hall of Fame inductions, family stories and the conversations Dr. Steve Johnston recorded on site.
Our part
Sponsorship, media coverage and travel helpAttendance reimbursements reduced the cost for patients and families who came.
Learn more
bbsfoundation.org (opens in a new tab)Upcoming events, Centers of Excellence and resources for families, on the Foundation's own site.

A shared journey

For families affected by Bardet-Biedl Syndrome (BBS), coming together is profound. The 2026 BBS Foundation Conference provided a space to connect, learn from leading researchers, and find strength in a community that truly understands.

As a BBS-affected family, A Race Against Blindness was honored to attend and proud to support this vital event. In addition to serving as a sponsor and providing media coverage to share these moments with the wider community, we provided attendance reimbursements that reduced the financial burden for participating patients and families.

Audience members viewed from behind, with some raising their hands, facing a speaker and presentation screen.

Connecting families worldwide

The conference recap.

This conference recap highlights families, clinicians, researchers, and Hall of Fame inductees from the 2026 gathering. Viewers will learn about recent BBS research developments and the educational content released from the event.

Watch the recap on YouTube (opens in a new tab)

Expert presentations and community voices

Watch 15 conference recordings featuring clinicians, researchers, family perspectives, and people sharing lived experiences with BBS.

Deep dive conversations

12 educational podcasts hosted by Dr. Steve Johnston (co-founder, A Race Against Blindness), offer perspectives on genetics, coordinated care, research priorities, diagnosis, and family experiences.