Education Hub
Vision & Eye Anatomy
Learn how the eye works — from the cornea and lens to the retina and visual cortex. Understand the structures affected by inherited retinal diseases.
Vision Loss Simulations
See how different IRDs affect vision through accurate simulations and progression animations — from tunnel vision to central scotomas.
Understanding Blindness
Blindness is a spectrum, not a binary. Learn about legal definitions, types of vision loss, mobility cane types, and what cane colors mean.
Newly Diagnosed Guide
Essential first steps, emotional support resources, and practical guidance for those recently diagnosed with an inherited retinal disease.
Genetic Testing Guide
Understand how genetic testing works, what results mean, how to access testing, and why identifying your specific mutation matters for treatment.
Children & Families
Resources specifically for families with children who have vision loss — from school accommodations to emotional support and developmental guidance.
Understanding Blindness Therapies
Learn about gene replacement therapy, gene editing, stem cells, optogenetics, retinal implants, and other cutting-edge approaches to treating IRDs.
Clinical Trial Education
Understand how clinical trials work, what to expect as a participant, phases of development, and how to evaluate whether a trial is right for you.
Low Vision Resources
Practical strategies, tools, and techniques for daily living with reduced vision — from lighting and contrast to mobility and organization.
Assistive Technology Setup
Step-by-step guides for screen readers, magnification software, smart home devices, and other assistive technology for people with vision loss.
State Blind Services
Find state-specific rehabilitation programs, vocational services, assistive technology funding, and support organizations in your area.
Find a Specialist
Connect with expert retinal physicians, genetic counselors, low vision specialists, and research centers specializing in inherited retinal diseases.
BBS Conference 2026 Archive
Revisit the Bardet-Biedl Syndrome Foundation Conference with talks, a featured recap, and podcasts covering research and lived experiences.
Education Hub — Learn About IRDs
All educational resources in one place. Guides on gene therapy, genetic testing, vision anatomy, assistive tech, and more.
A Free Resource of A Race Against Blindness
Learn & Explore
Your comprehensive guide to understanding inherited retinal diseases — from basic eye anatomy to cutting-edge treatments, daily living strategies, and finding the right specialists.
Explore the IRD Database
Access our comprehensive database of 53 inherited retinal conditions, 125 associated genes, active clinical trials, and the latest research updates.