Community Resources & Support

Illustration of the eye cross-section showing the retina at the back of the eye
Illustration of the eye cross-section showing the retina at the back of the eye

Condition-Specific Organizations

Support Groups & Peer Communities

Blindness & Low Vision Organizations

Guide Dog Programs

Assistive Technology & Rehabilitation

Genetic Counseling & Testing

IRD Support Resources

Support organizations, foundations, and community resources for people living with inherited retinal diseases and their families.

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A curated directory of organizations, support groups, and services for people affected by inherited retinal diseases. From condition-specific advocacy to guide dog programs and genetic counseling.

Showing organizations specifically relevant to, plus general IRD resources available to all patients.

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Know a Resource We're Missing?

Help us build the most comprehensive directory for the IRD community. If you know of an organization, support group, or service that should be listed here, let us know.