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A Race Against Blindness: funding sight-saving research for children with Bardet-Biedl syndrome and inherited retinal diseases

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Gilbert, AZ 85297 (This is a mailbox. We do not waste money on an office we do not need!)

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Who We Are

Bardet-Biedl Syndrome (BBS) is one of many genetic conditions that can cause RP/blindness in young children. Our son, Luke, has been diagnosed with BBS1 and is actively going blind. And thus, the birth of A Race Against Blindness, an organization dedicated to finding a cure for BBS/RP.

© 2026 A Race Against Blindness