News and Articles
Follow A Race Against Blindness research funding, inherited retinal disease developments, community stories, grant announcements, and updates from families racing toward sight-saving treatments.
Featured article
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)
Newly added funding closes critical gap and enables planned trial initiation in early 2026
Latest Posts
How We Keep Your Information Safe in Our Fundraisers
Your trust matters. In this article, we explain how we process donations securely, protect your personal data, and ensure safe participation in our fundraisers.
How Our Fundraiser Sweepstakes Work — Step-by-Step Transparency
Ever wondered how our sweepstakes winners are chosen? This article walks you through our process, from third-party administration to prize delivery, and shows you how you can enter without making a donation.
From Donation to Discovery: How We Fund Life-Changing Research
Every fundraiser we run has one ultimate purpose: funding research that can save and restore vision. This article shows how your donation moves from entry to lab.
Behind the Scenes: How We Operate at A Race Against Blindness
We know trust is earned. That’s why we created this 6-part Behind the Scenes series to show exactly how A Race Against Blindness operates — from how winners are chosen, to where donations go, to how we keep your data safe. Learn about our processes, our funding, and our commitment to transparency.
Founder Spotlight: Dr. Steve Johnston, MD, MBA
🌟 Founder Spotlight: Steve Johnston, MD, MBA Steve donated the very first van that launched our sweepstakes, and he continues to lead with dedication as a father, physician, and entrepreneur. Still working full-time as a radiologist and taking no salary, Steve devotes his days to building A Race Against Blindness and driving hope for families affected by Bardet-Biedl Syndrome.