Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2026

$1.1M

January
$1.1M

To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026.

2025

$1M

September
$1M

To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.

2024

$3M

October
$1M
December
$2M

To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

August 25, 2025
Our Commitment to Transparency — How to Verify Us

Transparency is at our core. Here’s how you can verify our nonprofit status, read our annual reports, and see independent recognition from trusted organizations.

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August 25, 2025
From Donation to Discovery: How We Fund Life-Changing Research

Every fundraiser we run has one ultimate purpose: funding research that can save and restore vision. This article shows how your donation moves from entry to lab. 

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August 25, 2025
Why You See Our Fundraiser Ads — And How It Helps Our Mission

If you’ve seen our ads online, that’s intentional — it means our mission to fight blindness is reaching more people. Learn why advertising is a key investment in awareness and fundraising.

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August 25, 2025
Where Your Donation Goes: Funding Research, Prizes, and Awareness

We take donor stewardship seriously. See exactly how your contributions are used to advance research, raise awareness, and deliver prizes to sweepstakes winners — with full transparency. 

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August 21, 2025
Founder Spotlight: Dr. Steve Johnston, MD, MBA

🌟 Founder Spotlight: Steve Johnston, MD, MBA
Steve donated the very first van that launched our sweepstakes, and he continues to lead with dedication as a father, physician, and entrepreneur. Still working full-time as a radiologist and taking no salary, Steve devotes his days to building A Race Against Blindness and driving hope for families affected by Bardet-Biedl Syndrome.

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