Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2026

$1.1M

January
$1.1M

To close the remaining funding gap required to launch the AXV-101 clinical trial, enabling the study to begin in early 2026.

2025

$1M

September
$1M

To support clinical development of the first-in-human trial, including trial preparation and regulatory progress following clinical trial clearance.

2024

$3M

October
$1M
December
$2M

To fund the preclinical development and regulatory preparation of AXV-101, a gene therapy for Bardet-Biedl Syndrome type 1 (BBS1), advancing the program toward its first human clinical trial.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

August 15, 2025
Verifying Our Legitimacy: Your Guide to Checking Any Charity

Blog Series: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 5: Our Commitment to Transparency & How You Can Verify Us

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August 15, 2025
Why We Chose Sweepstakes Fundraising — And How It Changes Lives

Blog Series: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 4: Why We Use Fundraiser Sweepstakes to Advance Our Mission

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August 15, 2025
Real Winners. Real Prizes. Real Impact.

Blog Series: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 3: Winners & Where to Find Them

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August 15, 2025
The Heart of A Race Against Blindness: Our Story, Our Mission, Our Impact

Blog Series: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 1: Who We Are & Why We Exist

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August 15, 2025
Fundraiser Sweepstakes Explained: Legal, Fair, and Open to Everyone

Blog Series: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 2: How Our Fundraiser Sweepstakes Work — And Why They’re 100% Legal

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