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Follow A Race Against Blindness research funding, inherited retinal disease developments, community stories, grant announcements, and updates from families racing toward sight-saving treatments.
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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)
Newly added funding closes critical gap and enables planned trial initiation in early 2026
Latest Posts
Celebrating a $1M Milestone for Sight-Saving Science
Why We Run Multiple Fundraisers
Some wonder why we host several fundraisers each year. The answer is urgency: children with Bardet-Biedl Syndrome are losing vision every day. Running multiple campaigns helps us raise funds quickly, reach more people, and keep hope alive for sight-saving research.
Why You See Our Fundraiser Ads — And How It Helps Our Mission
If you’ve seen our ads online, that’s intentional — it means our mission to fight blindness is reaching more people. Learn why advertising is a key investment in awareness and fundraising.
Where Your Donation Goes: Funding Research, Prizes, and Awareness
We take donor stewardship seriously. See exactly how your contributions are used to advance research, raise awareness, and deliver prizes to sweepstakes winners — with full transparency.
Our Commitment to Transparency — How to Verify Us
Transparency is at our core. Here’s how you can verify our nonprofit status, read our annual reports, and see independent recognition from trusted organizations.