Grant History

The $5.1M of total grant support we've given to funding research is made possible by the generosity of our sponsors and donors. Real people making an impact on saving children's eyesight.

Grant Amount

$3M
2024
$2.1M

2025

Year
Grant Amount
Month
Amount/ month
Purpose

2025

$2.1M

September
$1M
December
$1.1M

Supported clinical trial application, preparation and funding through the first year of the trial after approval.

2024

$3M

October
$1M
December
$2M

Supported pre-clinical work included dose ranging studies and therapeutic manufacturing.

2024

$3M

October
$1M
December
$2M

Supported pre-clinical work included dose ranging studies and therapeutic manufacturing.

2024

$3M

October
$1M
December
$2M

Supported pre-clinical work included dose ranging studies and therapeutic manufacturing.

News and Articles

Recent News
January 06, 2026
A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Newly added funding closes critical gap and enables planned trial initiation in early 2026

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A Race Against Blindness Awards Additional $1.1 Million Grant to Ensure Advancement of AXV-101 into Clinical Trial for Bardet-Biedl Syndrome 1 (BBS1)

Latest Posts

August 15, 2025
The Heart of A Race Against Blindness: Our Story, Our Mission, Our Impact

Blog Series: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 1: Who We Are & Why We Exist

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August 15, 2025
Fundraiser Sweepstakes Explained: Legal, Fair, and Open to Everyone

Blog Series: Trust, Transparency, and Our Mission: The Truth About A Race Against Blindness

Article 2: How Our Fundraiser Sweepstakes Work — And Why They’re 100% Legal

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August 15, 2025
Why A Race Against Blindness Is Not Yet Rated by Charity Navigator — And What That Really Means

Ever wondered why A Race Against Blindness isn’t rated yet by Charity Navigator? It’s simple: they require three years of IRS Form 990s, and we were established in 2023. While we wait, we’ve earned Candid’s Platinum Seal of Transparency and publish full Annual Reports — so you can see exactly how we operate, spend, and impact lives.

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March 25, 2025
Comprehensive U.S. Directory of Pediatric Retinal Disease Centers

This directory highlights premier institutions across the United States with specialized programs for diagnosing and managing pediatric inherited retinal diseases (IRDs) such as retinitis pigmentosa, Stargardt disease, Leber congenital amaurosis, and Bardet-Biedl Syndrome. Each listing includes the center’s website and contact information.

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